Thursday, November 29, 2012

The Reality of Lyme Disease

I'm sure some of you have noticed I have backed off a bit on my Lyme posts. Well I shouldn't say backed off, I am busier then ever. But I have changed my tune on things a bit. I wanted you to know why.

First, I'm not sure what I believe anymore. I used to believe that we all had this infection that we could treat with long term abx. I used to believe that LLMDS were the unsung heroes we needed to get better. Now, not so much. I still think LLMDS are heroes. I mean they believe in us, and listen to us and TRY to help us. I just don't think they have the answers yet. I'm somewhere in the middle of this IDSA VS Ilads thing.

You know how they say when you are in the middle of something you can't see the full picture. For example when you are in a bad relationship, you need to get your friend's viewpoint right? Because you know you are biased, you want a certain outcome. Well, doing what I do online, gives me an outside view of what's going on in the Lyme world. And I don't like what I see.

I see a lot of people spending lots of money on treatments that are not helping. And I'm not talking one treatment, I'm talking all of them. Whether it's antibiotics, picc lines, rife machines, zyto or ozone. I know a lot of people doing desperate things, and treatments that only desperate people would do. And spending lots of money doing them. The usual outcome: not much. Either you stay the same or get worse. So why do we keep doing these things?

1. Desperation. We want to get better.

2. Promises of different treatments curing Lyme. If I had a penny for how many times I heard someone say, "my drs success rate is 80%," I'd be rich. Where are these 80%? And please don't say to me, those people move on, they are not online. Because the fact is, I know the same people now, that I knew eight years ago online. And not too many are better. Some have even died.

3. The "herx" theory. Until we can really tell under a microscope, and drs are actually deploying it, I am not buying it. I know we herx, and I know there is such a thing. But honestly folks, let's face it, how many of these reactions or not true herxes and are just "flares," bad reactions to meds, or simply just over toxicity to meds.



Read this written by my friend  PJ Langhoff. I think she describes this subject well.


My wish for us all, is that there be more research. We need to figure out exactly what this is that we have, and we need accurate tests. How can we continue fighting different strains and species and infections if we don't even know for sure what we have? And we need research on the damage that "Lyme and friends" has done to us. Don't you all feel like you have circulation problems? I do. Is this damage or infection. We need to look more into it. I believe we have both, damage and infection.

So anyways, this is not to take away hope. This is not to make people feel stupid, this is not to say that noone has gotten better. This is just a little of my viewpoint on the reality I see in this "Lyme" situation.



The reason I want to get my opinion out there, is I want things to change. I want you all to get better. But if we are fighting for the wrong things, I don't think things will change. We need research. If we were dumping all our money we waste on treatments that are not helping, then maybe we would start to get somewhere and there would be hope for the future generations. Something to think about.

And again, I will repeat, I know some people get better. Just not enough.


How long have you been in Lyme treatment?
1-2 years
2-5 years
5-10 years
over 10 years
Create your own poll

Has Treatment Helped You?
Yes, I am cured.
Yes, a lot.
It brought me to a certain level and now I've plateaued
No, I have been on treatment but only got worse.
No, I am on treatment but stay the same.
I can't even afford treatment.
I got better with natural things instead of conventional ways.
Create your own poll

Tuesday, October 23, 2012

Food As Medicine Recipe for Health

Serenity Health Care Center


Food As Medicine
Recipe for Health

Serenity Health Care Center and Wisconsin Integrative Medical Society is excited to invite you to the first annual Integrative conference.  Join us for a day of fun and learning, talk to educated practitioners about various integrative health.  Have lunch with the celebrity chef  Michael Feker!

Today is the last day for Early Bird Registration!

Great lectures will be featured with exciting lectures: Join us Dec 1, 2012

Norman Schwartz M.D.

THE HEALING POWER OF FOOD THROUGH YOUR LIFE SPAN


Debra Muth WHNCP, BAAHP, MSNH, Master Herbalist

HORMONE DECEPTION


Susan Riegg M.D. FOOD FIGHT! NUTRITIONAL STRATEGIES FOR BEATING CANCER


John Whitcomb M.D.

THE ROLE OF FOOD IN REVERSING HEART DISEASE


Carol M. Brown,

DO FOOD FOR THOUGHT
 

http://www.serenityhealthcarecenter.com/WaukeshaHealthSeminars-CommunityEvents#FoodasMedicine  

Friday, October 5, 2012

Projects of October

Projects of October

OK this may be the most boring post ever, but this helps me to organize what I am doing each month. For some reason if it's written down on paper at my house, it will be thrown away or thrown into one of the many piles I have. So I'm putting it here where I know it won't disappear.

October Goals

1. Halloween Project~ Get as many people as possible to hand out Lyme info on Halloween to the kids and parents. You can order free brochures from the LDA.
Click Here to Order
2. Auction for Lauren ~ Lauren and her three kids all have Lyme Disease and are struggling to make it. I need to collect items for the auction.

Click Here to go to Auction


3. Mass Auction Across Facebook. Start organizing the "Each for His Own" Auction which will happen in November. Time to raise some Christmas/Treatment/ Bill money for everyone!



4. Crafty Diva~ Keep working on craft shop. Being on disability is really hard to live on. I appreciate it soo much. But it doesn't even cover my basic bills. So I am trying to go back to my old hobby of making crafts. Many years ago I had a little shop when I live in Arizona called, "A Little Country in the Desert." I am trying to renew my passion for painting and being creative, so here's my new online blog and shop.

Crafty Diva Blog

Crafty Diva Shop



5. Visit Brittany~  I have not seen my daughter in a couple months and want to go visit her.

Miss you Bipmy <3

6. Keep my holiday blog updated!



Image by Cool Text: Free Graphics Generator - Edit Image

Tuesday, September 25, 2012

Who is PJ Langhoff?

PJ Langhoff is an Author, Medical Researcher, Physician/Patient Advocate, Lyme Patient, Mother of Lyme Adults.

She has written and published internationally 12 books in two languages, 7 of them on Lyme and other tick-borne illnesses. She has worked behind the scenes in the medical, political, and social justice venues and in medical and legal research and publications since 1980 and played an integral role in an anti-trust investigation into the IDSA medical guidelines for Lyme disease and contributed research to a documentary film on Lyme.


To Read More about PJ Langhoff  Click Here

PJ's Cafepress Shops
Lyme Stuff





Here are some Youtube Videos that PJ Langhoff made to help those understand more about what they are up against with Lyme Disease and other Tick Borne Infection and Chronic Illness.



Book Description

March 15, 2012
See no evil, hear no evil, speak no evil...but do no evil. When world's collide, mankind is caught in the middle. Mutant organisms, infectious diseases, contaminated foods, polluted soils and waters, transgenic animals, GM crops, recombinant vaccines, and man-made life forms are all part of today's world of biotechnology. New epidemics have arisen such as Lyme disease, HIV/AIDS, Diabetes, Arthritis, MS, ALS, Chronic Fatigue, and Fibromyalgia which were unheard of just a half century ago. What is causing the emergence of new diseases? To understand current trends, we must examine the past 150 years of man's attempt to improve his environment using chemistry and biotechnology tools. Explore the history of today's technologies and the very real possibility that they may have heralded most of the modern diseases of our day, from Lyme disease to those without a name. Enter a world where diseases are ignored, patients are vilified, and some infectious diseases cannot even be detected by the best laboratory tests. Detecting the undetectable pathogens is the first step to treating diseases of today. Learn what your doctor doesn't even know about one of the most common infections in the world. You may have Lyme disease and not even know it. If you do, this book could be the first step toward getting the help you will need in a medical arena that is highly political, and emotionally charged.


The Fourth Monkey: An Untold History of the Lyme Disease Epidemic

Book Description

January 25, 2011
Did biowarfare cause Lyme disease and other illnesses of our time? This book is a startling history of "biowarfare" as it relates to the emergence of the modern diseases of our era. Learn how the diseases of the past century may hold clues to many well-known medical issues of today including AIDS, Lyme disease, Alzheimer's, Cancers, Rheumatoid Arthritis, Diabetes, Chronic Fatigue, Multiple Sclerosis, Lupus, Fibromyalgia, Autism, ADD, Morgellan's, and many more. Learn what insects, pollutants, insect releases, biowarfare testing, the chemical and nuclear age, and engineered microbes and agriculture have to do with human epidemic diseases. Absolutely novel theories on the origin of HIV/AIDS, Lyme disease, and other illnesses are presented which have never before been postulated or published! There is also discussion on the biological control of vertebrates, infertility, mutant bacteriae, fluorides, prions, retroviruses, contaminated cell lines and blood products, and the reactivation of important viruses. This fascinating book provides startling new evidence that will undoubtedly lead to paradigm shifts in thinking about the origins of important infectious diseases, provide helpful clues to new curative treatments; and hints at the roles that industry and government may have played in the emergence of diseases and denied illnesses. Discover the truth behind public health "protections," GMOs, vaccines, biologically altered foods, applied insecticides like "Bt" and its relationship to anthrax, as well as industry tools, toxic pollutants, bioremediation, natural resources, Eugenics, regulations, patented technologies, and chemical and biological weapons of warfare that have been deployed to protect us from insects of medical, agricultural, and veterinary importance. This book will challenge readers to rethink "conspiracy" theories about the origins of illness using the controversial Lyme disease as a model. It also provides an intricate glimpse into some of the roles that the biotech, pharmaceutical, and agricultural industries have played over the past century and a half in influencing medicine. Learn how infectious diseases are being denied by some academic scientists who research same; and by some medical professionals among whom are the eyes and ears of the public health services and who may be controlling the information flow about important diseases due to private agendas. Discover also the intensely political arena that global medicine has become today due to an obvious shift from human rights toward industrial rights; and the role that government policy, the insurance industry, multinationals, and even the media are playing in facilitating the global denial of patient illnesses. By the author of leading books on Lyme disease, whose work was part of an historic anti-trust investigation into medical guidelines for Lyme disease and an award-winning medical documentary film. Completely updated and revised edition.


God Science: The Secret World of Rampant Genetics, Hidden Illness, and Biotech Profiteering



Book Description

January 15, 2009
Lyme disease-the unknown epidemic. Learn why billions of dollars are spent each year on an illness that is called easy to treat. Third book in the It's All In Your Head series on Lyme disease, learn who and what may be behind the denial of a global epidemic. A compelling expose of the politics and controversy behind a medical paradigm that reveals the research, the players,and the billions of dollars that keep medical product pipelines flowing in the infectious disease and vaccine markets.

The Baker's Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm?

Book Description

September 1, 2008
An impactful, personal look at patients living with Lyme disease in an era that dismisses this epidemic. Discover the truth about Lyme disease--that it is not a joint arthritis, but a complete body illness affecting hundreds of thousands of people across the globe. With 80 personal stories from patients describing a chronic illness the government, insurance and medical establishments deny exists.


It's All In Your Head, Around the World in 80 Lyme Patient Stories

Book Description

August 1, 2008
The History of Lyme disease, tick-borne illnesses, testing, and the politics and personal stories as told by Lyme patients.

It's All In Your Head, Patient Stories From the Front Lines



Book Description

March 21, 2007
A compelling, honest story of one American family already struggling with undiagnosed Lyme disease that is forced to deal with a myriad of unexpected issues, and then is hauled through the family court system and crucified for having that illness. The story touches on the very real aspects of a complex and controversial disease. Embracing tabu subjects, it paints a clear portrait of the face of Lyme Disease, and the discrimination of its patients in many arenas. "I had this experience before in the presence of very rare and very special people--individuals with a very rare prophetic genius. I sensed I was witnessing the birth of someone who possessed many rare gifts, which when fused, become a spokesperson for millions. PJ Langhoff is that person." -James L. Schaller, MD, MAR

The Singing Forest, A Journey Through Lyme Disease
More Videos by PJ Langhoff

Add a Message for Deepak!

Our dear friend Jenny Rush has a very inspiring blog, Lyme Thriving. In case you haven't seen it yet, you must check it out!  Jenny is one of the people I know who actually got much better. She didn't just do one treatment or the other, she used an approach from the physical and spiritual side. Please check out her blog to read her story and tips on healing.

For right now, Jenny is putting forth an action to get Deepak Chopra involved in our Lyme plight. Deepak has tweeted a post from Jenny's Lyme blog so we are hoping he will be open to help us. We know he is a busy man but wow, what a great person to have on our side, right? So we all have to do our part in reaching out to him.

Jenny has started a post for him on her blog where we can all leave comments for him to read. Please stop by and leave your comment. Let him know what you have gone through. Make sure to keep it a reasonable length though. When things get to lengthy people tend to skin instead of read the whole post.

Saturday, September 15, 2012

Starting Samento and Banderol

Ok after reading this article,
In Vitro Effectiveness of Samento and Banderol Herbal Extracts on the Different Morphological Forms of Borrelia Burgdorferi,
I have decided to give herbs a shot again. Today I started with just one drop of Samento and will increase everyday til I'm at ten drops (bid), twice a day for a week. Then I will add in Banderol at the same rate. 

I am hoping this along with my juicing/diet regimen will help some of my symptoms or at least allow me to function somewhat. Each morning when I wake up my eyes are swollen and I have such bad head pressure. I am hoping since Samento is an anti-inflammatory, it will give me some relief from this. 

I'd love to hear anyone else's experience if you are on this too. Please just leave a message in the comments.

Wednesday, August 29, 2012

Comparison Between Treatment for Different Conditions

I have been diagnosed with Lyme Disease and I was chatting with my friend who has been diagnosed with MS. As we were comparing notes, he noticed that the treatments for several conditions were pretty much the same. I can't help but to wonder if doctors or researchers are comparing notes too? Are they noticing that these conditions have many of the same symptoms? Do they compare notes like the patients do and realize that no matter what "condition" a researcher is working on, it is coming down to the same treatments? 

Let's take a look at just a couple conditions here such as MS, Chlamydial Pneumonia, Lyme and ALS in this post. At the bottom of this post you can click on a further detailed article about other conditions such as Fibromyalgia, Chronic Fatigue Syndrome, Crohn's Disease and Lupus.

I think there is a lot of "labels" thrown around for different conditions. But basically what they all have in common is "inflammation." Doesn't all disease start with inflammation? But what seems to be missing is the "cause" to said conditions. Is it an infectious agent such as Lyme Disease, Chlamydial Pneumonia or Epstein Barr? Is it a combination of infectious agents and possible elements from our environment such as pesticides and toxins in our food. Why do some people get sick but not others, is it that we are predisposed to some condition because of our genes?

And which factors do we need to change, add antibiotics in, take bad diet out? What is going to be the ultimate solution here? 

Click on Picture to Enlarge

Click Picture to Enlarge
Click Picture to Enlarge


 * All antibiotics or supplements highlighted in yellow seem to be a common denominator. 

 

Dr Wheldon's article on  MS and Chlamydial Pneumonia

http://www.davidwheldon.co.uk/ms-treatment.pdf

Doxycycline 100mg orally once daily is taken with plenty of water.
Azithromycin 250mg orally, three times a week should be added.
(Roxithromycin, 150mg twice daily, is an alternative.)
When all this is well tolerated, the dose of Doxycycline is increased to 200mg daily.

Vitamin C 1G daily
E 800iu daily
Omega 3 fish oil daily
Evening primrose oil 1G daily
Acetyl L-Carnitine 500mg daily
Alpha Lipoic acid 150mg daily
Ubiquinone (Coenzyme Q10) 200mg daily
Selenium 200 micrograms daily.
N-acetyl cysteine 600mg twice daily
melatonin 1.5mg at night may be considered.


Dr David Wheldon believes he cured his wife with Zith, N-acetyl cysteine, and Metronidazol.





Treating MS, ALS and Lyme Disease with Antibiotics

 http://www.direct-ms.org/pdf/CausalSpecific/MS_LymeDisease.pdf

doxycycline, azithromycin, and cefuroxime


Dr Burrascano's Lyme Disease Treatment Guidelines

http://www.ilads.org/files/burrascano_0905.pdf

*Amoxicillin- Adults: 1g q8h plus probenecid 500mg q8h; doses up to 6 grams daily are
often needed
*Doxycycline- Adults: 200 mg bid with food; doses of up to 600 mg daily are often
needed, as doxycycline is only effective at high blood levels.
*Cefuroxime axetil- Oral alternative that may be effective in amoxicillin and doxycycline
failures.
Tetracycline- Adults only, and not in pregnancy. 500 mg tid to qid
Erythromycin- Poor response and not recommended.
Azithromycin- Adults: 500 to 1200 mg/d. Adolescents: 250 to 500 mg/d
Add hydroxychloroquine, 200-400 mg/d, or amantadine 100-200 mg/d
Clarithromycin- Adults: 250 to 500 mg q6h plus hydroxychloroquine, 200-400 mg/d,
or amantadine 100-200 mg/d.
Telithromycin- Adolescents and adults: 800 mg once daily
*Augmentin- Standard Augmentin cannot exceed three tablets daily due to the
clavulanate, thus is given with amoxicillin, so that the total dose of the amoxicillin
component is as listed above for amoxicillin.
Chloramphenicol- Not recommended as not proven and potentially toxic.
Metronidazole: 500 to 1500 mg daily in divided doses. Non-pregnant
adults only.

Supplements

PROBIOTICS
MULTI-VITAMIN
CoQ 10
ALPHA LIPOIC ACID
VITAMIN B
MAGNESIUM.
GLA (omega-6 oils) and EPA (omega-3 oils), derived respectively from plant and fish oils. This is
Fish Oil
ACETYL-L-CARNITINE
Acetyl-L-carnitine
METHYLCOBALAMIN (Methyl B12)
GREEN TEA
Methylcobalamin B-12
GLUCOSAMINE
VITAMIN C
CREATINE Creatine has been shown to be of benefit in neuromuscular degenerative diseases such as Lou Gherig’s Disease (ALS) and can be very helpful in supporting low blood pressure, as in NMH.
MILK THISTLE

ALS Patients do a Combo Creatine and ABX Treatments

http://www.ninds.nih.gov/news_and_events/news_articles/news_article_als_combination_treatment.htm

creatine and the antibiotic minocycline


Recovery from ALS/ Dave Marrs

http://www.lymeneteurope.org/forum/viewtopic.php?f=10&t=149#p519

Story of man who recovers from ALS using:
IV Rochephin
Doxycyclene
Flagyl

Is Multiple Sclerosis Curable?

 http://perfecthealthdiet.com/2010/07/multiple-sclerosis-a-curable-infectious-disease/

Paul Le Gac noticed similarities between multiple sclerosis and symptoms developed in the aftermath of diseases like Rocky Mountain spotted fever and typhus caused by Rickettsia bacteria. [2] Rickettsia are obligate intracellular parasites that cannot survive outside a host. By 1966, Le Gac recognized that the Chlamydiae, another order of intracellular parasitic bacteria, might be responsible for MS. 


Le Gac tried treating multiple sclerosis with tetracyclines and other broad spectrum antibiotics, and reported a number of cures. Here is one of his case studies:

http://perfecthealthdiet.com/2010/07/multiple-sclerosis-a-curable-infectious-disease/
Mr. Maurice Q., a Belgian citizen, 46 years of age. Multiple sclerosis was manifested in 1955 by transient retrobulbar neuritis. In 1956 he became bedridden. As of November 1961, [he had been] totally quadriplegic for three years….
Antibiotic treatment and alginated baths were followed, within a few months, by a spectacular improvement.
In May 1962, Mr. Q. was walking normally. He was able to discard all assistive devices, and soon afterward went back to work as a freight–truck driver.



Monday, August 6, 2012

The Perfect Storm

People always ask me why I named my blog, "The Perfect Storm." Well the answer is because I don't think that what is making us sick is "just" Lyme. I believe it is a combination of factors. I believe it is bacteria, viruses, pollution, toxins, chemicals, pesticides, chem trails and a whole slew of other things that factor in to chronic illness. Thus creating, "The Perfect Storm," for us to become chronically ill.

I think that is why many of us don't seem to be getting better. It may have all been set off by a tick bite, or however you might of gotten exposed to Lyme, but that is only the beginning of this story. What happens next seems to spiral into a much more complex beast.

I don't believe there is a cure for what we have yet. I don't believe we know exactly what it even is yet.  I do believe we need more research.

But on that note, I do believe we can do certain things to help us to heal. I believe changing our lifestyle and diet is #1. But that's a whole other blog and journey I am embarking on. If you would like to follow that please visit "Eating My Way To Better Health. 

Saturday, August 4, 2012

Project "Faces of Lyme, Our Children" Done!

I want to thank all the mom and dads who let me use their children's pictures to tell the story of Lyme Disease. I really hope this reaches the public, not just the Lyme community. We all know the suffering already but if these kid's faces don't touch a drs heart, I don't know what else will.

Monday, July 16, 2012

Five Lyme Projects In The Works


Click Here to See Project

Project # 1. Cards For Kids~ A project to send cards to kids who are sick.  
http://fundraiserhelpat.blogspot.com/p/cards-for-kids.html
 
Please click here to learn more about this project. Basically we will be listing kids who are suffering from different illnesses and who could use a little cheering up. If you would be interested in sending a card them please check it out. If you know someone who would benefit from this, please click on the link and submit the information about the child. Thank you! 



Click Here To Go To Maps
Project # 2. For Facebook Users~
Click on the link and Tag the State you Live in to find Lymies near you~ There are maps for every state, every Province, every continent. Please join in. Let's show everyone how many people are infected in each state/country.
Click Here


Click Here To Join Facebook Group
Project # 3. Faces Of Lyme~ Part 3~ Children with Lyme Video. This is the third in a
series of Faces Of Lyme Videos that I've made. This one will feature just kids.
https://www.facebook.com/events/252190144897705/
I just need a picture or two of your child with a sentence or two about their situation. You can put factual information, like, "sick for five years,"or you can put "the human side" like, "watching his soccer team from the sidelines." Whatever you are comfortable sharing about your child's  journey through Lyme.


Click Here To Join Facebook Group
Project # 4. "Rally Around The World" for Lyme Disease. We are trying to put   
together a rally that will be on the same day in the United States and Canada
and any other country that would like to be involved. We would like a peacefully
Lyme Awareness Rally to be in front of every Capitol in every state and
Providence. We will need a team leader and committee in each state. I haven't
made a page yet for this but when I do I will keep you posted.
 https://www.facebook.com/events/463894453630122/

Project # 5 "Telling Youre Lyme Story Through Pictures"
I am  collecting pictures for this. It can be
* one or two picture
* a collage of pictures
* before/after lyme
* during lyme
* treatment pictures
* herxing

 Here is where I am putting the pictures.
http://www.squidoo.com/how-has-lyme-affected-you-patient-s-stories

Send pictures to: wheresthekarma@yahoo.com

Friday, July 6, 2012

Natural Antibiotics


1. Garlic

Research has confirmed that garlic possesses numerous antioxidants that kill bacteria and free radicals in the blood stream.  It is also an anti fungal. Bacteria in the body does not appear to develop resistance to \garlic as they do to many antibiotics.
Active Ingredient: Allicin which is antibacterial and also anti viral. It can attack and destroy a variety of viruses and fungal infections, such as candida.

http://www.naturalnews.com/035516_natural_antibiotics_superbugs.html#ixzz1zubx3WPN
http://www.garlic-central.com/garlic-health.html
http://www.umm.edu/altmed/articles/garlic-000245.htm

2. Echinacea

Echinacea  strengthens the immune system and fights a variety of infections. It has been  used to treat open wounds, diptheria, cellulitis, blood poisoning, syphilitic lesions and other bacteria.. It can be used to fight colds and flu.  Echinacea can destroy  virulent bacteria such as Staphylococcus aureus which causes  MRSA.




3. Colloidal Silver

CS is a  germicidal and antibacterial. It also  supports the natural 
defence system of the body and is powerfully alkaline. Research shows that it works by acting as a catalyst, disabling the enzyme that single-celled bacteria, fungi and viruses require for the metabolism of oxygen.  This then suffocates the invading cell whilst doing no harm to any human enzymes, resulting in the removal of disease-causing organisms from the body.


4. Pau D'Arco

Pau d'Arco is an herb native to South America whose active ingredient lapachol, has been found to relieve a wide range of infections. It is an anti-bacterial, anti-fungal and anti-viral.  Studies suggest that Pau d'arco may also have cancer-fighting properties. Pau d'arco was used by the Indians of South America to strengthen the immune system and fight life-threatening diseases. It is usually given in a tea.

Active Ingredient: The active principles are lapachol, quercetin and other flavonoids. There are claims that it is useful in managing diabetesfibromyalgia, and lupus. This herbal tea is used by many during the cold and flu season,and coughs.


5. Manuka Honey

Manuka honey comes from Australia and New Zealand. When applied topically it can kill a wide variety of pathogens, including MRSA and flesh-eating bacteria. Not all Manuka Honey is active, you have to make sure you get an active type. Manuka Honey has been used by the Maori People for centuries for an upset stomach and as a salve on open wounds in the skin.



6. Cat's Claw

This plant comes from Peru. Many cultures native to the South American rain forest areas have used this herb for hundreds of years. Research shows  it may have positive effects on, and can boost the body's immune system.
Active Ingredient: The active substances are alkaloids, tannins and other phytochemicals. Alkaloids have been proven to be immune system boosters. The major alkaloid rhynchophylline has anti-hypertensive effects, lowering blood pressure and increasing circulation. It is also an anti-inflammatory, antioxidant and has anticancer properties.
It has long been used as a homeopathic treatment for Crohn's disease, gastric ulcers and tumors, parasites, colitis, gastritis, diverticulitis and leaky bowel syndrome.

 http://www.kcweb.com/herb/catsclaw.htm
 http://altmedicine.about.com/od/herbsupplementguide/a/Cats_Claw.htm


7. Oil of Oregano


Active ingredient: Carvacrol. Oil of Oregano has been found to be effective against Staph, E. coli and Listeria. There has been a lot of studies showing it can kill many bacteria. It can be used to fight intestinal parasites and is also an anti fungal.

http://www.lewrockwell.com/orig/sardi6.html

http://www.homeremediesweb.com/oil_of_oregano_health_benefits.php


To learn more "natural antibiotics" click on this picture.


 




Leave your experiences  below. 

Wednesday, July 4, 2012

On This Fourth of July

May you not have sound sensitivity so you can enjoy the fireworks without wearing earplugs!

May you not have light senstivity, so you don't have to wear sunglasses!

May you find a good natural bug repellent so you don't get more bugbites!

May you feel good enough to leave your home and get to watch the fireworks outside among other humans!

May your dogs not crumble in fear!


Walt Disney Fireworks



London Fireworks 


Saturday, June 23, 2012

Saturday, June 16, 2012

My View on the Reality of Lyme

I'm sure some of you have noticed I have backed off a bit on my Lyme posts. Well I shouldn't say backed off, I am busier then ever. But I have changed my tune on things a bit. I wanted you to know why.

First, I'm not sure what I believe anymore. I used to believe that we all had this infection that we could treat with long term abx. I used to believe that LLMDS were the unsung heroes we needed to get better. Now, not so much. I still think LLMDS are heroes. I mean they believe in us, and listen to us and TRY to help us. I just don't think they have the answers yet. I'm somewhere in the middle of this IDSA VS Ilads thing.

You know how they say when you are in the middle of something you can't see the full picture. For example when you are in a bad relationship, you need to get your friend's viewpoint right? Because you know you are biased, you want a certain outcome. Well, doing what I do online, gives me an outside view of what's going on in the Lyme world. And I don't like what I see.

I see a lot of people spending lots of money on treatments that are not helping. And I'm not talking one treatment, I'm talking all of them. Whether it's antibiotics, picc lines, rife machines, zyto or ozone. I know a lot of people doing desperate things, and treatments that only desperate people would do. And spending lots of money doing them. The usual outcome: not much. Either you stay the same or get worse. So why do we keep doing these things?

1. Desperation. We want to get better.

2. Promises of different treatments curing Lyme. If I had a penny for how many times I heard someone say, "my drs success rate is 80%," I'd be rich. Where are these 80%? And please don't say to me, those people move on, they are not online. Because the fact is, I know the same people now, that I knew eight years ago online. And not too many are better. Some have even died.

3. The "herx" theory. Until we can really tell under a microscope, and drs are actually deploying it, I am not buying it. I know we herx, and I know there is such a thing. But honestly folks, let's face it, how many of these reactions or not true herxes and are just "flares," bad reactions to meds, or simply just over toxicity to meds.



Read this written by my friend  PJ Langhoff. I think she describes this subject well.


My wish for us all, is that there be more research. We need to figure out exactly what this is that we have, and we need accurate tests. How can we continue fighting different strains and species and infections if we don't even know for sure what we have? And we need research on the damage that "Lyme and friends" has done to us. Don't you all feel like you have circulation problems? I do. Is this damage or infection. We need to look more into it. I believe we have both, damage and infection.

So anyways, this is not to take away hope. This is not to make people feel stupid, this is not to say that noone has gotten better. This is just a little of my viewpoint on the reality I see in this "Lyme" situation.



The reason I want to get my opinion out there, is I want things to change. I want you all to get better. But if we are fighting for the wrong things, I don't think things will change. We need research. If we were dumping all our money we waste on treatments that are not helping, then maybe we would start to get somewhere and there would be hope for the future generations. Something to think about.

And again, I will repeat, I know some people get better. Just not enough.


How long have you been in Lyme treatment?
1-2 years
2-5 years
5-10 years
over 10 years
Create your own poll

Has Treatment Helped You?
Yes, I am cured.
Yes, a lot.
It brought me to a certain level and now I've plateaued
No, I have been on treatment but only got worse.
No, I am on treatment but stay the same.
I can't even afford treatment.
I got better with natural things instead of conventional ways.
Create your own poll

Friday, June 15, 2012

Great Tick Info For Kids

This website has a lot of good info for kids about Lyme Disease and ticks. There are bookmarks, coloring books and all kinds of fun stuff to get their attention. Please check out "Timothy the Tick."


Ideas For Parents Who Are Home Sick With Kids

Tips On Keeping The Kids Busy



1. Have your child make a list of relatives that they love. Give them a couple coloring books and have them color a picture for each of the people they chose and mail them the page they colored for them.
Benefit: This should afford you a one hour nap plus keep kids in contact with family members that probably avoid you now.

2. Find any outside group activities going on in your neighborhood such as churches or summer schools and see if you can get your child into a car pool.
Benefit: A couple hour nap, maybe even a detox bath, in peace.

3. Netflex and books on tape will give you some nice time with your kids where you won't have to be active.
Benefit: Quality, but quiet time with your children.

4. Simple homemade toys such as a ball maze  or make a fort they can play quietly in.
Benefit: Helps them to be creative and it's a good way to get an older sibling to help the younger ones.

5. Two words: chalkboard paint! You can paint a wall, a door, a table or anything you want with this. It will keep them busy for hours!
Downfall: You have to be able to paint a wall or door or table. Benefit: This is something they  can play with over and over..Just wipe the slate clean and  start over again.

Please post any ideas you have in the comments.