Sunday, November 23, 2014

What's Happening in the Lyme World Lately?

Hope everyone had a Happy Thanksgiving!

Events That Took Place in November

November 4, 2014

Protest: Patient Emergence~Oregon Health Policy Board Meetings Coordinator:  Deb Elder Where: OHSU Division of Infectious Diseases 3181 SW Sam Jackson Park Road L457 Portland OR 97239-3098 See Pictures and More Information Here
The Holiday Wishlist Starts! 
Click Here for More Information!
Pain Summit Lyme Booth
Nov 14, 2014
Laurie Myers is setting up a Lyme booth at the Pain summit.
https://www.facebook.com/events/241713422691306/?pnref=story
Chandler Center for the Arts, 250 N Arizona Ave, Chandler, AZ, US

Sadly Those we Lost in November

Two huge advocates for Lyme Disease. 

Dr Willy Burgdorfer Read Memorial Here






Leslie Feinberg Read Memorial Here





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If you are in need this holiday season, please stop by to add your wish to the list!

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Teleconferences and Radio Interviews for November

Lyme Thriving Teleconferences
Nov 3rd, 2014 
Jenny Rush hosting. The topic is dealing with the process of returning to normal life after a prolonged illness. Recording of the call Facebook Event Page
Nov 20th, 2014Special guest Dr. Gary Gruber will be making a live video presentation on Lyme Disease and intestinal health.
Facebook Event Page

In the News

These following articles were all from November


Yahoo!7 News
Australians flock to overseas Lyme diseasetreatment. Thousands of Australians are suffering from Lyme Disease and being diagnosed in overseas labs, despite the government insisting can’t be contracted here. Sunday Night: November 23, 2014, 6:30 pm.

Boston Globe
Burns’s experience, along with two other cases detailed in a paper published this week in JAMA Internal Medicine (a publication of the Journal of the American Medical Association), highlights the challenges — and dangers — of some Lyme disease …


WBUR
Potentially promising news on Lyme disease: Johns Hopkins researchers report a new, improved test for determining which drugs may work against Lyme diseasebacteria that persist even after antibiotic treatment. This enters the contentious realm of …

ESPN
“It’s really special because Lyme disease has become part of my life now,” Delle Donne said in a phone interview. “I learned that I’ll wake up every day and deal with it. There are good days and bad days. If I can be a voice and reach out to people and 

Wilkes Barre Times-Leader
A film about Lyme disease titled “Under Our Skin” will be screened at 7 p.m. Thursday in the American Legion, 33 Center Ave. in Plymouth. Meaghan E. Bird, an infectious disease technologist with the Northeast Wildlife DNA Laboratory at East Stroudsburg …

Poughkeepsie Journal
The Infectious Disease Society of America holds that 28 days of antibiotics are enough to kill the spirochete that causes Lyme disease. However, some advocates in the medical community and sufferers of Lyme disease have fought to change those 

AGNR Scientist Awarded Funding to Further Lyme Disease Research
Inside his state-of-the-art lab, Pal’s team grows Borrelia in test tubes, genetically modifies the pathogen, and uses it to infect ticks at different stages of development to figure out which components of the bacteria help it to survive
WCSH-TV
The Centers for Disease Control follows the Infectious Disease Society of Americaguidelines, which shows three weeks is enough time for the antibiotics to cure Lyme Disease. Using the same clinical data, InternationalLyme and Associated Diseases 

Boston Globe
John Burns wasn’t getting better. He was diagnosed with Lyme disease six years ago near his home in Albany, N.Y., using a federally approved test. While he was treated with several courses of antibiotics. Seven months later, he was still suffering from …

Health Hub from Cleveland Clinic
Hunters, hikers and others who spend time outdoors in wooded or bushy areas and meadows may be at risk for tick bites. And those bites can lead to Lyme disease. Ticks also like the 

New York Times
Willy Burgdorfer, a medical entomologist who in 1982 identified the cause of what had been a mysterious affliction, Lyme disease, died on Monday at a hospital in Hamilton, Mont. He was 89. The cause was complications of Parkinson’s disease, said Tom …

Washington Post
Wilhelm “Willy” Burgdorfer, a Swiss-born researcher who gained international recognition for discovering the bacteria that cause Lyme disease, died Nov. 17 in Hamilton, Mont. He was 89.

Boston Globe
John Burns wasn’t getting better. He was diagnosed with Lyme disease six years ago near his home in Albany, N.Y., using a federally approved test. While he was treated with several courses of antibiotics. Seven months later, he was still suffering from …

Chem Trails


Many of you might have not heard of chem trails before. Like Lyme, there is much controversy about what they really are. The more I research the more it becomes really apparent that they are not good for us. Anything being sprayed into the air we breath  cannot be a good thing.

Theories on the Reason For Chem Trails

1. Weather Modification
2. Pesticide Control
3. Mass Vaccinating
4. Human Depopulation

What Has Been Found In Air Samples

MycoplasmaFermetens Incognitus-

Pseudomonas fluorescens- which is a bacteria that causes upper respiratory illness and  blood infections in humans.

Streptomyces- which are pathogens that cause infections in humans, such as mycetoma.

Black Yeast- a bioremediation organism which causes respiratory infections in humans.

Ethylene Dibromide (EDB)- a banned pesticide

Enterobacter cloacae- A rod-shaped bacterium that is oxidase-negative and catalase-positive.

Serratia marcescens- This causes upper respiratory infections resulting in pneumonia. This is the same chemical that was sprayed into the New York subway system in 1953, and over Dorset, England from early 1966 to 1971 by the military in both countries. It was then withdrawn as a biological warfare stimulant in the 1970s when this infectious agent was deemed too hazardous for use on friendly "test populations."

Enterobacteria- This can cause gastrointestinal illness.

Lithium- a mind altering drug
Metals-
Aluminum
Antimony
Arsenic
Barium
Cadmium
Chromium
Copper
Iron
Lead
Manganese
Nickel
Zinc




To learn more and see chem trails videos click here.

To go to Wisconsin Chem Trails Click Here.


Vaccines











 





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Other Factors in Chronc Illness


If you are chronically ill and looking for answers to why you can't seem to get better, please consider the following suggestions.




Gene Mutations


Mold




Pesticides and Environmental Factors



Lyme, Morgellon’s, and Yes, I’m saying it again: Insecticides by PJ Langhoff

How antibiotic-resistant bugs are really created…

 Potentially Harmful Pesticides Found In All Human Subjects Tested

12 Dangerous Pesticides

Monday, April 14, 2014

For people who have stopped treating Lyme:


There is a group of us, like myself, that don't "treat" Lyme anymore. We have just reached a place of acceptance, for various reasons to stop treating.

There comes a time and place for some of us who have been sick for a long time where you realize this disease may be lifelong. Treatment may make some of us better, while others, it makes us worse, and I'm not talking about the "herx" reaction, which I believe is an over used term.

I am talking about just being at a place of wanting "quality" of life and to live as functionally as possible. When I treat, I am bedridden. When I don't I am able to shower daily, go to the store if I need to and basically live life. Not to the degree I prefer but it's better then being bedridden.

I am not at an age where I feel it necessary to keep starting new protocals every six months. I don't feel I have that kind of time left. I just want to live happily whatever life there is left. Quality vs quantity.

If I saw a treatment that consistantly made people better, I'd jump on the bandwagon. The day that 100 people a day were leaving my Facebook wall because they were going back to work, is the day I'd start that treatment. But so far, I am not seeing that. In fact some of the people I see claiming to be "better" seem the sickest to me out of everyone. I don't know if it's what I call 'Lyme denial" or just their wishes are so strong to be better that they can't accept they are still ill. I believe our "cure" is still out there.

And im not saying treatments dont help anyone..some people definetly get helped..but for me, I didnt.. and this is what i choose to do. Live as functionally as I can. And man does that take the constant anxiety off of me. I don't have to try to make myself better, I don't have to worry about how I'm going to react to the next protocal I start. I don't have to worry about keeping up on the latest Lyme treatments or understanding the complexities of Lyme Disease. I can leave that in the hands of researchers, doctors and whoever else is smart enough to figure it out.

I do do some natural things, like juicing to try to boost my immune system. But other then that I think it's time to get back to living. For me.

I guess my way of fighting Lyme now, is through activism. We first need recognition so we can get some real research. Trying to end it for future generations. So when I do these protests or awareness events, Im not fighting for "treatment" necessarily...not the current treatments, Im fighting for recognition of this disease. Then I believe true research will be done.

For People Treating Lyme Disease


I have had a couple people say to me that they feel like failures because their treatments aren't helping them. I want to clarify something for these people. 

*It is NOT your fault you are sick or that Lyme treatments suck.

* We are all guinea pigs right now, nothing is proven yet. You are paving the way for next generations to have better treatments. 

* You are not alone, I see thousands of people a day not getting better, so don't put that responsibility or pressure on yourself, it is NOT you that is failing, it is the Lyme treatments and medical communites that are failing to give us proper treatment or to find a cure. 

* You did not ask for this disease. It is just simply not your fault.