Thursday, December 30, 2010

RIP Jason

I am sorry to say we lost a friend today.  Jason Lee passed away from Lyme Disease tonight. He was a young father, married with two yound children. Can everyone please pray for his family. His best friend died from ALS last year. His dad and his nephew also have lyme and all go to our Ingleside Illinois support group.

I am also asking for prayers for others, Donna and Theresa, who are also in my support group that are going through a hard time right now. Hang in there ladies, we love ya!

Saturday, December 18, 2010

New Goals

I am working with some great people on two new projects regarding Lyme Disease. One is a website for Lyme Events. I am working with my friend Robin on this. We are trying to create one website where everyone can track what is going on in their states or countries as far as Lyme Disease events or support groups. It is not up and running yet, but we are hoping after Christmas it will be, just in time for May, Lyme Disease Awareness Month. Then we can all plan together and keep up to date in all the events each state or country is planning.

Secondly, I am working with two really good friends, Kenny and Adi on a group that focuses on compassion. This is the blog for our project: Our goal is to reach out to our Lyme friends who are in need. So many people struggling with this disease have no support, noone to turn to. We want to let them know they are not alone. We will do this with things as simple as sending them kinds words on their blogs or facebook pages, or we may send them a "special carepackage." We just want people to know they are not alone, and we care.