Monday, November 28, 2011

For All My NYC friends!

                 Take Your Picture Under The ILADS JumboTron 

The International Lyme and Associated Diseases Society is running a powerful public awareness campaign to create greater understanding of the dangers of Lyme Disease, thanks to a special donation of advertising time on the CBS Jumbo Tron.
Upload Your photo standing under the ILADS JumboTron and we’ll add it to the ILADS JumbroTron gallery. Write us a note and let us know what you thought of the JumboTron.

Sunday, November 27, 2011

New Borrelia Culture Test - Faster & More Accurate

September 5, 2011 Joe Burrascano, Jr., MD has announced a new lab test available for Lyme doctors to use in determining if Lyme is present. There is no need to wait for antibodies to form since this is a culture-based test. This should provide much faster and more accurate detection, and allow Lyme patients to receive treatment as soon as possible. Please read below for Dr. Burrascano's description of the new test:

Wednesday, November 23, 2011

I am thankful for laughter, except when milk comes out of my nose.

I am thankful I can see much to admire in all religions.

Appreciation is the highest form of prayer, for it acknowledges the presence of good wherever you shine the light of your thankful thoughts.

As we express our gratitude, we must never forget that the highest appreciation is not to utter words, but to live by them.

God gave you a gift of 86,400 seconds today. Have you used one to say "thank you?" ~William A. Ward

Silent gratitude isn't much use to anyone. ~G.B. Stern

If the only prayer you said in your whole life was, "thank you," that would suffice. ~Meister Eckhart

The only people with whom you should try to get even are those who have helped you. ~John E. Southard

Gratitude is the best attitude. ~Author Unknown

Thou hast given so much to me,
Give one thing more, - a grateful heart;
Not thankful when it pleaseth me,
As if Thy blessings had spare days,
But such a heart whose pulse may be Thy praise.
~George Herbert

Monday, November 21, 2011


Check out Lymepedia for definitions, treatments options, and lots of other answers for you Lyme and Tick-Borne Infection Questions! 
Click Here  

Thursday, November 17, 2011

Wednesday, November 16, 2011

Dr. Hoffmann’s license has been suspended

Message from Mike From the Wisc Lyme Yahoo Board:

Re: Dr. Hoffmann
It has come to my attention that Dr. Hoffmann’s license has been suspended. The suspension may go into effect next week. The attorney assured us a deal was in place and there was no need for concern. Obviously this is not the case.

I’m speaking with several folks involved in this matter and trying to get a clear picture of what transpired. I should have a further update later this evening. It’s very suspicious to me that a deal is struck, folks are informed not to show up for the hearing and then a suspension is ordered.

The hearing room was packed with TV crews today to cover the case against Doctor’s writing absentee excuses for protesters in the state capitol this past March.
I will update as I get info.


Tuesday, November 15, 2011

Daryl Hall's Experience With Lyme

Listen to Daryl Hall talk about his experience with Lyme Disease. Did you know his whole family has it?


Introduction to the Byron White Formulas and Their Use in Lyme Disease So many people are trying these herbal treatments so I'd like to give you guys a link to learn a little more about them. I am currently using A-Babs and A-Bart myself.
                                  Byron White's Formulas

Ingredients in A-Bart and what they do:

Gou Teng: This herb has been used to lower the excitability of the central nervous system. Used also in Chinese medicine for hypertension, convulsions, headache, dizziness and apoplexy. A published journal article written by scientists in the Department of Oriental Pharmaceutical Science at South Korea's Kyung Hee University found the aqueous extract of gou teng may increase serotonin levels in the brain, resulting in mood and cognitive improvements, as well as help in the treatment of OCD, IBS, fibromyalgia, depression and anxiety.
Neem: This herb's anti-viral, anti bacterial and anti-fungal effects are well documented. Evidence exists for its use in pneumonia, ulcers, gout, diabetes, hypertension, skin infection and wound healing.The essential fatty acid content in Neem is high.
Grapefruit Seed: Grapefruit seed is considered therapeutic against hundreds of different bacteria, virus, parasite and fungal strains.The extract from the seeds helps inhibit intestinal infections while balancing healthy bacteria. It is a strong antioxidant with high nutrient values, including biotin and Vitamin C. It also is helpful with lymphatic drainage and elimination of toxins.
Indian Sarsaparilla: This herb has its action on circulation, autoimmunity, joint disease, digestive issues and viral infections. It is potentially most important as a rich nutrient and alkaloid source. For example, this provides saponin, panillin, cetyl-alcohol, cobolt, pollinstanol selenium, smilagenin, stigmasterol, zinc and Beta and Epsilon-sitosterol.
Poke Root: Poke root helps detox the lymphatic system. It stimulates production of B and T immune cells and is active as an anti- inflammatory, anti-viral and antibacterial agent. Rich in alkaloids that produce antihistamine effects, it also increases the brain's production of GABA.
Licorice: Licorice binds to many types of neurotoxins, making it important as a detoxification agent. It contains mucogenic agents that soothe stomach and duodenal ulcers. It has been used in the treatment of chronic fatigue syndrome, and may have antiviral effects.
Garlic: Garlic functions as a broad-spectrum antimicrobial and metabolic agent. It has historically been used as an anti-fungal, anti-bacterial, anti-spirochete, anti-septic, diaphoretic, diuretic, expectorant and heavy metal chelator. It supports liver detoxification and decreases LDL cholesterol. It is a cardiovascular tonic, helps with the biosynthesis of fatty acids and phospholipids, and acts as an anti-clotting agent.
Clove: This herb acts as a tonic, febrifuge, antiseptic and anti-fungal with anti-parasitic activity. Usnea: This herb is a broad-spectrum antimicrobial that affects viruses, protozoa, Candida, trichamonas, Chlamydia and other microorganisms.

You are not alone in this fight.

You are not alone in this fight. If you have Lyme Disease never give up. You never know if there may be a cure around the corner!


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Sunday, November 13, 2011

Worst things about having Lyme Disease

I think the worst thing about having Lyme Disease is the loss of everything, I mean not just your health, but your friends,  your job, your ability to do things with your kids. And then that results in guilt. Guilt for not being able to be there for people, or do things that they expect you to do. Of course, it is all compounded by the fact that we "look normal." So people expect us to "act" normal, even if inside we are crumbling. 

The relentless, never ending, always changing symptoms just make it impossible to plan anything or know how long you can stay somewhere, even if you are able to get there. Just don't know when and what they will be when the symptoms appear. And some days the symptoms are tolerable, you can function with them, and others, they just make you completely dysfunctional. It's hard to "just be" on those days. 

Saturday, November 12, 2011

Don't forget to sign in

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Lyme Disease Canada Ontario Tick Cycle

Check out this video please! Lyme Disease Canada Ontario Tick Cycle Taliana Christine Heffer~ where we are lyme in ontario cycle for ottawa ministry of health Deb Matthews chief medical officer James Christie

say hi here in the comments

Hey if you are coming to visit this blog, say hi here in the comments and introduce yourself!! I'd love to know who is visiting!  ~Lisa

Friday, November 11, 2011

Really great news everyone!!

Really great news everyone!!

The state of WI. Dept. of Safety and Professionalism has reached an agreement with Dr. H and his attorney. It appears Dr. H's license is no longer in jeopardy. He will continue practicing. 

We DO NOT have to attend the Hearing on the 16th of Nov. 

It seems clear that over 2,000 petition signatory's {with comments} along with hundreds and hundreds and hundreds of patient testimonials had an effect on the WI. Med Board and the Office of Safety and Professionalism. Many people were working on this behind the curtain and we thank them sincerely. However, YOU, the "People Have Spoken" and you've made yourselves loud and clear.

More details will be posted as they become available but it appears:

A. Dr. H's license is no longer in jeopardy.
B. Folks DO NOT have to attend the Hearing on the 16th.

Kids Lyme Chat

Kids Lyme Chat - Friday Night – 8 pm central
Go to the site, click the Chatroom link, pick a Username and you’re in. All children in every state are invited.
{Ages 8-13} Supervised by parents and WI. Lyme Yahoo Moderators
Darren {age 10} has formed this chat group to reach out to other children with lyme disease. Darren’s mom is Kristin Collins RN and a co-moderator of WI. Lyme Yahoo. Kristin’s e-mail
Darren’s chat group is growing, the children really seem to enjoy it. Darren has a Facebook page as well. Lyme Kids.

               Are you looking for Lyme Bracelets? - 10% Discount

Sunday, November 6, 2011

IDSA Protest- Boston 2011

        Are you looking for Lyme Bracelets? - 10% Discount

I am hoping that this protest news will eventually make it into a newspaper or on the news. As time elapses the chances are smaller and smaller. So please everyone share this. If you have any connections in Boston, please use them and see if we can get any of this covered by the media!!!

Saturday, November 5, 2011

The Witch Hunt Of Lyme Drs

Here is my newest online article about The Witch Hunt Of Lyme Drs, please check it out!!! Now that my lyme dr is being investigated again, I think it's time to put pressure on those who are putting pressure on us!

Thursday, November 3, 2011

Petition For Dr Hoffman

Another Lyme doctor is under attack again from the medical board!
Please sign this petition to show support for Dr Hoffmann.

The medical board will be having a hearing on Wed Nov 16th at 8:30 am. It will be held at the Wisconsin Dept of Regulation and Licensing Building at 1400 E West Washington Ave. Room 121A, Madison Wi 53703. We are all going to show up at 7am to show our support. Make a sign stating why you are there to support Dr Hoffman.

More Details:


It has come to our attention that Dr. Hoffmann has received a letter from the School of Medicine & Public Health {U of Wisconsin-Madison}. Dr. Hoffmann was required to attend a Physician Assessment Center. Dr. Hoffmann has completed all tasks that were required of him. The final report as filed by the doctor’s that observed him found him deficient in:

* Patient interviewing and communication skills

* Record Keeping

* Overall Fund of Medical Knowledge

* Mental deficiency due to diagnostic procedures and hesitant speech patterns

35 years of practicing medicine and they don’t like the way he speaks.

Based upon these findings the WI. Department of Safety and Professionalism {specifically, lead investigator Arthur Thexton} has issued a petition to have Dr. Hoffmann’s medical license suspended immediately pending a final decision by the WI. Medical Examining Board.

I want to clarify that this has nothing to do with Dr. Hoffmann’s lyme treatment regimens or any lyme patients whatsoever.

In fact the School of Medicine & Public Health states in their letter to Dr. Hoffmann… “A significant portion of his practice is treating patients with chronic lyme disease. His patients often come from hours away to see him. In the broader medical community, the diagnosis and treatment of chronic lyme disease is controversial: however, he appears to adhere to diagnostic and testing protocols that have been developed by medical groups with interest in this area of medicine.”

We’re requesting that ALL of Dr. Hoffmann’s past and present patients please write an e-mail on his behalf immediately.

In your e-mail, please state:

1. How you were misdiagnosed

2. How Dr. Hoffmann’s treatment has helped you progress

3. The effect Dr. Hoffmann’s treatment has had on you and your family.

4. How removal of Dr. Hoffmann’s license would effect you and your family.

Once your e-mail is completed please paste these e-mail addresses and send to all of them collectively. {Subject line; Dr. Hoffmann}

*Dept. of Safety and Professional Services

*{If you wish to write a letter, Arthur Thexton’s fax 608-266-2264}

*Rep. Kevin Petersen {Waupaca}

*WI. Medical Examining Board

We must have everyone write immediately on Dr. Hoffmann’s behalf. I would ask other Doctor’s, medical people and support group members that are familiar with Dr. Hoffmann to write an e-mail on his behalf.

They can pass an order to suspend his license immediately and then go through the years long, laborious process to get it reinstated. I spoke personally with Doc last evening regarding this matter and he’s devastated. The man can’t even afford an attorney. Of course, what doctor could charging $100 per-office visit and taking Medicare and Medicaid patients ? It’s time we gave back to him.

Distribute this far and wide so we can reach out to all of Doc’s patients.

Thank you,

Mike Nickel


WI. Lyme Network

Wednesday, November 2, 2011

Elizabeth Chalkers' Book

Please check out my friends book. She wrote this while being chronically ill. Really sick with Lyme Disease and mold sickness. Please help her out and check out her book.

Elizabeth's personal story about her extraordinary faith during an endless season of pain, torture and debilitation caused by Chronic Late Stage Lyme Disease, Coinfections, Mold Illness, and Lyme Induced Endometriosis will change your life for the better!
                                            Click Below

Tuesday, November 1, 2011

Please check out my new Lyme Disease Website. I have tried to compile all the basic information needed to learn about Lyme and co-infections. I also included an events calendar which lists support groups by state and in Canada. There is a page of research papers I have collected over the years too. Stop by, print them out and bring them with to dr appointment or mail them. Let's spread the word on this nasty disease! 


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