I am not a medical professional or anything like that. The only reason I am doing this post is so that others with Lyme or other related diseases realize they are not alone. Whenever I mention I get these weird symptoms on Facebook I am flooded with emails saying things like, "wow I thought I was alone in these weird feelings, I was scared to even tell my doctor!" So on that note, here is some things that I feel that I believe are related to lyme or the inflammation caused by whatever the heck we all have, be it lyme or some other neurological issue.
1. Outward shaky~ This one is self explanatory. It's when you hold your hand out and can visibly see yourself shaking.
2. Internal shaking~ This is when I feel the sense that I'm shaking, but I can't visibly see it.
3. Internal Tremor~ This is more like a buzzing feeling. I feel like there is an electric current running through me. It can be through my whole body, just in my head or in any extremity. I wake up in the morning with this really bad sometimes. Also experience this after any physical exertion. If I try to exercise, I get this so extremely bad that I cannot walk or function. Showering also causes this. I also experience this after eating sometimes.
4. Quaking~ I totally made up this word to describe what my head feels like sometimes. It is usually when I wake up I have what feels like, well the only way I can think of explaining it is like plates in the earth shifting. I know that sounds crazy. But it's like something is rubbing against themselves and shifting back and forth in my head. This is also accompanied by a sound, a deep low pitched noise that I first think is something on the outside. Like at first I always think it's coming from in back of me, like a truck backing up sort of...but then I realize it's in my head and noone else can hear it. Within seconds of hearing it, I feel the "quaking" feeling.
All of the tremors are usually associated with extreme neck pain and stiffness and head pressure, ear pressure, jaw pressure and swollen eyes.
I also get a feeling sometimes like I am out of my body. I feel like I'm way above myself and it is accompanied by a dream like state. I feel like nothing is reality, or like I'm in a tunnel watching everything from far away.
One more strange sensation that I feel is like I'm about to leave my body. It's a feeling like my whole soul is vibrating and trying to escape this sick body. When I get this I really feel like I have one foot in the physical world, and one in the spirit world. Like it's that time to go Home. Again, I know it sounds crazy but this is just my experience of what I feel and I wanted to share it with others so they may not feel so alone or scared if they experience it themselves and they are too scared to talk about it.
If you experience anything like this or something different you want to try to explain please feel free to leave it in the comments below.