Just wanted to let everyone know that the Boston IDSA guidelines Protest was a huge success!! Over 80 Lyme patients or family supporters showed up to protest in front of the Boston Conference Center. When we first got there an officer walked over to see what was going on. We told him and he said someone in his family is affected by lyme also. It was smooth sailling from there. We all gathered right across the street from the conference center with signs and chanting, "IDSA, our Lyme Disease won't go away." Throughout the day IDSA doctors came over to either take pictures or video, some to talk to us, and one that yelled at us and called us crazy. (Durland Fish Phd). But that's ok, we got our points across. I was really pleased that some actually seemed genuinely interested in what we going through and wanted to hear about the research not only about Lyme but about the co-infections. Job well done fellow lymie! See you next year at the next one in California!

 

IDSA Protest

Hope to see you all in Boston this weekend! Hope everyone is feeling well and able to make it! 

Remember, this is a peaceful protest. We will have signs and chant but now yelling, no doing anything that could jeopardize the points we are trying to make. We want to make them aware that the science that Lyme is Persistant is out there. We need them to review and change their guidelines! Lives are counting on it. 

Making A Pearl Out Of The Grit Of Life

To check out this tribute  to Sharon Rainey please go to: http://www.squidoo.com/a-tribute-to-sharon-rainey

Check out my Halloween Store!
If you haven't gotten a costume yet or decorations for you yard, you have to look at this. The baby costumes are so darn cute!!


http://timefortheholidays.blogspot.com/

Illinois Lyme Walk

The walk went great!! Thanks for everyone who helped make the walk a success!!

So excited for the walk tomorrow!!! Sunday, September 25 3rd Annual Lyme Disease Awareness Walk Registration 10:00 AM 2.5-mile walk 11:00 AM Independence Grove, Libertyville, IL We look forward to seeing you at beautiful Independence Grove for our 3rd Annual Walk. The event will be held at the scenic North Bay Pavilion, and with over 4000 square feet under cover (complete with a fireplace!), we'll have a fabulous time - rain or shine. There will be hot food, live entertainment, great raffles and activities for the whole family. At the North Bay Pavilion we have full use of the adjacent volleyball court and fishing pier (so bring a volleyball and your fishing gear!). On-line registration will be open until 4 PM Saturday, September 24. We also welcome on-site registration on Sunday at Independence Grove. See our event flyer for more details. To register or donate on-line: Go to SignMeUp.com To register or donate by mail: (100% of your registration or donation supports our efforts) please print out, complete and mail in the event registration form. Walkers: Our pledge form is available to help you collect additional donations.

Great Gluten Free Website

http://www.affairsofliving.com/