And How Are You?

Ok, you all hear my ramblings on this page all the time. Stop by and tell me how YOU are doing? I would like to hear from you all and see how you are really truly doing. 

In the meantime this picture is for all you. 

Have a nice wonderful day. Take care of yourselves today. Rest, be easy with yourself.

Sick of the Lyme Situation

You know the more I learn about Lyme, the less I know. I'm really sick of it, trying to understand something that is way over our heads, something that doctors can care less about, lyme, co infections, viruses, parasites, toxins and everyone arguing over it. The truth is none of us know shit about it, otherwise we'd all be cured, yet here we are sitting here trying our best to figure it out, because the medical community is just ignoring us. Shame on the United States for this. The IDSA/CDC is affecting how the whole world is being treated. Karma sucks..and at this point I have to rely on karma to throw justice at these guys who are causing suffering and torture to millions across the world. It should not be patients trying to sit here, through their own brain fog and sickiness trying to figure this out, it should be the medical community, researchers and all the organizations sworn to help us! This is ridiculous, this whole situation.

What Lyme Feels Like Today

Today I feel like this is what an autistic child must feel like, all sound sounds like screaming and all light is blinding, my body is buzzing and everything just seems exaggerated. I want to hide under the blankets but I can't handle anything on my skin either. It feels like my skin is sunburned. Everything just hurts. When someone talks or the tv is on, it's like a lightning strike going through my head..It feels like sound is electricity coursing through my ears.

When I worked at a group home for mentally challenged men, many who were autistic, I remember they couldn't handle noise, light, sound or any kind of activity. That is how I feel today.

I feel like a "neuro basketcase."

Let Your Voice be Heard on CNN

Please click on these articles and be heard.

1. Lyme Disease and Suicide, an Ignored Problem~ An article that talks about the issues we as Lyme patients or family members of Lyme patients, have to cope with when we watch our friends or family members commit suicide. Click Here to Leave Your Comment

2. Mayday 2013, Lyme Disease Rally in Washington DC~ CNN actually noticed this story. Now as we are planning on Mayday 2014 we should start asking them to pay attention again. Click Here to Leave Your Comment

3. Worldwide Lyme Disease Protest~ This article was written last year in regards to the WWLDAP. Now that planning is taking place again, let's all get their attention and leave as many comments as possible either telling them how the protests affected them last year, or how they expect them to change things this year. Click Here to Leave Your Comments.

Aimee's Fundraiser

My friend Aimee is having a fundraiser. I would like to help her by posting it here. She does so much for others and is one of the sweetest people I have ever met. She made these ornaments to help raise money for herself. A portion of the funds will be donated to Lyme Awareness events this May, 2104 and the rest will be to help her get to them.

Please help Aimee either by donating to her fundraiser.

Or by purchasing one of her ornaments.

Please stop by her blog too!

A bad day...

I woke up today sick. Really sick. What I call a "below baseline" day. Everything in my body and mind hurts or feels weird. 

My legs and hands are vibrating. Feels like electricity is running through them, some kind of internal vibration. My head feels swollen or inflamed from the inside out. Like my brain is too big for my skull. I got up to go to the bathroom and had to lay back down again quickly, so dizzy and weak.

Does this ever end? Over 20 years of this shit, and counting.

I got so much to do, so much.

Mentally, having a hard time too. The ups and downs of this disease just suck. You get your hopes up, having some good days or thinking some treatment or protocol is working then bam, you are down again. Fuck this. I hate Lyme.

Again, my mind goes to so much to do. I have over 100 messages to read between g mail, yahoo and Facebook. All people looking for answers. I don't know what to tell them anymore. I want to give them hope but I don't want to give them false hope.

Does anything work? People swear by "A, B & C" but I see the same people here on facebook that I used to talk to 8 years ago on Myspace. Noone is going anywhere, we are all still here trying to figure this out. Only a handful seem to have broken free from the Lyme world.

Should I answer questions anymore? Do I make people lose hope when I tell them my opinions? Or is the truth necessary to move forward to get some answers? Is my truth different from other people's truths though? Maybe I should just retire and be done with the Lyme politics. Should I do Mayday and the Worldwide? What am I fighting for anymore? I think we need more research and that's what we should be fighting for. But sometimes I feel alone in that. When I post about that, everyone argues with me. So why do I put 24/7 into something I stand alone on? I guess because my heart tells me to. And I follow my heart above all else because I believe that is where God put's "His Voice," in our hearts. That little voice that tells us to do this or that, just because we should.

Part of me just wants to retire and let others take over now. But I feel responsibility because I know I have all of you at my fingertips.. I know I can help, I can organize. Everyone is too sick and suffering and it's gotta stop. Kids have this...that little voice in my heart tells me to keep going.  But something is missing. We're like a bunch of rats running around a maze with no clue what we are fighting for. How do we get us all to unite. Or maybe all the different battles and goals are necessary to reach the big one. Recognition of this damn disease?

Yep bad day.

Discussion between myself and Wallace Kingston, please join us!

I posted this post in response to a question my friend, Wallace Kingston asked me on my Facebook Page. He asked me what I think about parasites being the "end all" in lyme treatment...this is what I said.

"I'm scared to post my real feelings here on facebook.. I really don't believe we have the answers yet. Every couple months there is some "new thing" that is going to cure us..and it never does. XMRV, KPU, CCSVI, MTHFR, and on and on. People aren't getting well enough on abx and several of my friends died while on treatment. So for me, I think we need to stop fighting for long term abx and fight for research, start from the ground up. But I don't know who will do that. It seems people are either idsa slanted or ilads slanted..I don't think either has the answers yet. If they did, we wouldn't all be here on my page anymore. We'd be out living life. I see too many people say they are better, when I think we just get used to it, or our bodies just start repairing by themselves, not necessarily cuz of the treatment we are on. Too many times I see people say they are in remission and then a year later they are back here, sick again.

I mean lyme waxes and wanes, thats what it does. I have good and bad periods and I haven't done treatment in years, other then juicing.

Which brings me to my next point. I watch people cycle through abx, herbs, supplement, rife and all the goodies. But what ends up happening is when they get off all the meds, and start eating healthy,which I know is totally hard to do, they start becoming functional again..like me. I am still sick..don't get me wrong..but since i started juicing..i am functional.

But then again, it seems like each person responds to something different, so who am I to say. Some people swear by abx, some by herbs, some by rife, some by ozone... this is so damn complicated that I don't know how anyone can ever figure it out. 

Sometimes I think it's a "spiritual" disease. Like the universe is trying to tell us to quit spraying chem trails, stop putting pesticides in our foods, stop using poison everywhere, in our food, in the air, stop vaccinating ourselves with all kinds of crap..what am I missing? lol...it's like our body is being hit at every angle with something not good for us. Maybe it's time to get back to basics..and then we will all be healthy again. 

Aren't you glad you asked me now?"

I decided to post this on here because it got such a big response on Facebook. Some people agreeing, some not, some saying nothing is helping them and maybe even making them worse, and some saying that one treatment or other cured them. The diversity in answers just goes to prove my point further..We are all different, we are all responding to more then just "Lyme." If we all had the same exact issues we would respond to the same treatment. But we are all suffering from "poisoned bodies." Between chem trails, air pollution, vaccinations that we have gotten, the foods we eat, the bacterias, virsuses, parasites each of us has been exposed to, maybe Lyme being what lowered our immune system making it hard to fight all of the above, I'd say we are all guinea pigs right now. I would say that none of us know the "for sure" way to get rid of Lyme or whatever it is we are suffering from. 

Please add your opinions below. Don't feel bad to agree or disagree, these are just my personal opinions from my own personal experience. We would love to continue this discussion and hear everyone's opinions.