Thursday, February 10, 2011
Thursday, January 13, 2011
New Diet
Well every person with Lyme I talk to that is doing better at all talks about how they changed their diet. So I am going to follow their lead. This seems to be my hardest area to change for some reason. But last night I went out and bought a bunch of organic, alkalizing, good for my blood type types of food. So we shall see. The beginning of another journey. So far one carrot, pineapple, orange, cilantro, cranberry, spinach slushie down! Wasn't bad actually.
Next journey, to begin rifing again!
Next journey, to begin rifing again!
Thursday, January 6, 2011
Been so busy!!!!
Wow this last week things have really come to fruition. It has been really busy. For as sick as I am, and rarely leaving my little tiny apartment, I feel blessed to have a full time job in Lyme activism. God gives me neverending energy when it comes to this. And I have met the greatest people ever!!
I was happy last night to see Theresa and Donna at our Lyme meeting. Both still very sick but at least out of the hospital. Ready to start their healing now. The support group I go to, started by Kimberly Frank a couple years ago, started out a small little group. Now there's are over thirty members, and they are non profit and doing so much work in activism and supporting other lymies. Check out their website http://www.lymesupportnetwork.org/. There is a letter on there from Dr Maloney, that explains to Drs why they need to diagnose Lyme clinically, print it out and send it to your drs!!
Another thing I've been working on that I blogged about below has been modified. I was working with my friend Robin on a site we were going to call Lymeunited, but she has been really sick and is just not up to it. So I made this website, and am hoping when Robin gets better she can rejoin me. :) Here is the site, if you have any info on support groups or events, please let me know so I can add them. http://lymeevents.webs.com/
The other project I'm so excited about is this group with my freind Kenny & Adi. Please check this out, we need donations of love!!Our goal in this group is to reach out to fellow lymies in need. The website is http://handsforholdinghearts.blogspot.com/ and the facebook group for this is http://www.facebook.com/pages/Hands-for-Holding-Hearts/174955079202037?ref=ts#!/pages/Hands-for-Holding-Hearts/174955079202037
I was happy last night to see Theresa and Donna at our Lyme meeting. Both still very sick but at least out of the hospital. Ready to start their healing now. The support group I go to, started by Kimberly Frank a couple years ago, started out a small little group. Now there's are over thirty members, and they are non profit and doing so much work in activism and supporting other lymies. Check out their website http://www.lymesupportnetwork.org/. There is a letter on there from Dr Maloney, that explains to Drs why they need to diagnose Lyme clinically, print it out and send it to your drs!!
Another thing I've been working on that I blogged about below has been modified. I was working with my friend Robin on a site we were going to call Lymeunited, but she has been really sick and is just not up to it. So I made this website, and am hoping when Robin gets better she can rejoin me. :) Here is the site, if you have any info on support groups or events, please let me know so I can add them. http://lymeevents.webs.com/
The other project I'm so excited about is this group with my freind Kenny & Adi. Please check this out, we need donations of love!!Our goal in this group is to reach out to fellow lymies in need. The website is http://handsforholdinghearts.blogspot.com/ and the facebook group for this is http://www.facebook.com/pages/Hands-for-Holding-Hearts/174955079202037?ref=ts#!/pages/Hands-for-Holding-Hearts/174955079202037
Tuesday, January 4, 2011
Letters Campaign
Letters For Lyme! Letter Writing Campaign
This campaign in going on now. From Oct 14 until Oct 28, 2011.
The IDSA continues to deny the existence of Chronic Lyme Disease and the severity of the growing Lyme Disease epidemic throughout the world. This letter-writing campaign is about exposing the lies being thrown at the public, putting everyone's health at risk. This is going to be a broad spectrum campaign that will include many different contacts.
Help to bring the ID$A's conflicts of interest and greed-driven $cience to light- let your voice be heard!
As in our previous campaigns we will once again be using a form letter. To access the form letter or to see our list of where to send your letters/emails, go to:
Letters For Lyme Blog Spot
Where To Send The Letters
This event is open to patients as well as family and friends.
For More Information go to these links:
Facebook Group for "Letters For Lyme"
Friday, December 31, 2010
Thursday, December 30, 2010
RIP Jason
I am sorry to say we lost a friend today. Jason Lee passed away from Lyme Disease tonight. He was a young father, married with two yound children. Can everyone please pray for his family. His best friend died from ALS last year. His dad and his nephew also have lyme and all go to our Ingleside Illinois support group.
I am also asking for prayers for others, Donna and Theresa, who are also in my support group that are going through a hard time right now. Hang in there ladies, we love ya!
Saturday, December 18, 2010
New Goals
I am working with some great people on two new projects regarding Lyme Disease. One is a website for Lyme Events. I am working with my friend Robin on this. We are trying to create one website where everyone can track what is going on in their states or countries as far as Lyme Disease events or support groups. http://lymeunited.com/ It is not up and running yet, but we are hoping after Christmas it will be, just in time for May, Lyme Disease Awareness Month. Then we can all plan together and keep up to date in all the events each state or country is planning.
Secondly, I am working with two really good friends, Kenny and Adi on a group that focuses on compassion. This is the blog for our project: http://handsforholdinghearts.blogspot.com/. Our goal is to reach out to our Lyme friends who are in need. So many people struggling with this disease have no support, noone to turn to. We want to let them know they are not alone. We will do this with things as simple as sending them kinds words on their blogs or facebook pages, or we may send them a "special carepackage." We just want people to know they are not alone, and we care.
Secondly, I am working with two really good friends, Kenny and Adi on a group that focuses on compassion. This is the blog for our project: http://handsforholdinghearts.blogspot.com/. Our goal is to reach out to our Lyme friends who are in need. So many people struggling with this disease have no support, noone to turn to. We want to let them know they are not alone. We will do this with things as simple as sending them kinds words on their blogs or facebook pages, or we may send them a "special carepackage." We just want people to know they are not alone, and we care.
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