Friday, May 18, 2012

In case you didn't catch the 20/20 segment on Lyme Disease, here is a small segment:






What was good about the show: 


It brings about awareness about Lyme Disease. It also educates people on how Lyme symtpoms are always different in each person. One person may have sore joints, while the next has memory issues. There are no one set of symptoms for tick borne diseases. I was also glad to see co infections brought up.

What I'd like to see changed for future shows
, is that first of all, stop asking people if they are faking it. You would never ask a cancer patient that! Elaina did a good job defending herself, but why shoudl she have to? 


Secondly, why is Lyme always lumped in with such things as eating rocks? This is a serious disease. It can be fatal. Why not put it on a show all of it's own, or among cancer or HIV shows?

Tuesday, May 8, 2012

Tick Safety and Lyme Prevention

Starring in this video is the little tick I found on my neck yesterday morning. Hope it doesn't creep you out too bad!

Tuesday, May 1, 2012

Adding an Awareness Ribbon on Your Picture or Turning Your Picture Green Instructions



Turn Your Picture Green
Click on one of these photo editing sites
Luna Pic
Be Funky


To Make Cool Text
Click below:
Image by Cool Text: Free Logos and Buttons - Create An Image Just Like This

or Click Below:
 
http://glitter-graphics.com/myspace/text_generator.php

To Add A Ribbon
Image by Cool Text: Free Logos and Buttons - Create An Image Just Like This

Just click one of these links to add a ribbon onto your profile picture. You can design your own here to. You just need a picture to upload.

Just a Plain Ribbon
Lyme Awareness Month Pin
Rest In Peace Ribbon

Rest In Peace Bigger
I Will Beat This

Hope, Faith, Love, Cure Pin
Whatislyme.com Pin
Whatislyme.com Pin
Lyme Awareness Month Pin
Lyme Awareness
Warning Lyme Rage Pin
Caution Lyme Rage Pin

Lyme Rage
Screw Lyme Disease
Screw Lyme

Tick Pin for your Profile Picture
Anti-Tick Pin

Check For Ticks
We Need A Cure

Thank you for 
stopping by!
Image by Cool Text: Free Graphics Generator - Edit Image

Sunday, April 29, 2012

5 Helpful Things to do to Help Someone You Love That Is Chronically Ill

1. Just Listen~  Don't try to find a solution. Most likely someone who is ill has researched and already found the obvious treatments. They just need to be able to open up about their feelings without feeling like someone is judging them for feeling sad, angry or scared.

2. Just do it, don't ask~  If you stop by and see there are dishes in the sink, of course it will help if you do them. Someone who is ill will appreciate that so much. It is little things like that, that are huge to a person that is sick. Stop by with an already made dinner, or offer to give their kids rides to school. Things like this help tremendously. Just don't ask. People don't want to feel like a burden and it is hard to swallow your pride and admit you need help.

3. Support their diet~ Sometimes to someone who isn't sick, diets of those who are might seem extreme. Trust them that there are reasons for them to eat how they do. Remember it is hard for them too. I'm sure they would rather be eating a chocolate chip cookie then a salad with gluten free dressing, but certain foods triggers inflammatory  responses or allergic reactions. So understand that they have certain dietary needs and support them.

4. Support their treatment~ This is another time when you just need to support, and not judge or try to give advice. When a person becomes chronically ill, they have ample time to research and learn about their disease. They will know all the treatments, join all the support groups and hear all the advice out there being given on there specific disease. When you see an ad in the back of some magazine that says, "(blah blah blah) cures this disease in six weeks, dont' clip it out and give it to them. If it sounds to good to be true, it is. When you are chronically ill, it is because there is no cure. So all a person can do is try different treatments to find what works for them. There will be no easy answer and each person will respond differently to each treatment. Just because your cousin Jack got cured in five weeks from something doesn't mean the next person will.

5. Don't Invalidate~ When someone says they are in pain, they are in pain. It doesn't matter that they "look" fine. There is no official face for pain. If they are moving slow, then let them take their time. Just because one day they had a "good" moment, doesn't mean they are fine now. With chronic illness symptoms wax and wain. One day might not be as bad, or above baseline, and they might be able to work out in the garden for an hour. This does not mean that at the drop of a hat they can go out to eat or do the dishes. When you are ill you learn to take the moment at is comes or to live "five minutes at a time." So try not to compare days or activites. The person is not faking. It is normal for a chronically ill person to have good times and bad times. Most likely their "good" times might land a normal person in the hospital, but they have learned to live around their symptoms and not panic anymore at certain aches and pain or strange neurological symptoms.


Wednesday, April 25, 2012

Lyme Disease Memorials~ Videos and Sites


Here's the links to my Lyme Disease Memorial Videos and website. They are all the same just different music so if someone wants to add their own they can or they can pick which one they want to play at which event...like walks or benefits..



Lyme Memorial with rock/country songs http://www.youtube.com/watch?v=9JCN4pyOq1A
Lyme Memorial with no music http://www.youtube.com/watch?v=qZKik5l5hfY
Lyme Memorial with classical music http://www.youtube.com/watch?v=UdJfExZM7wM

Heres the online memorial that you can leave comments on each person who passed pictures...http://www.squidoo.com/lyme-friends-memorial

Another online memorial~ http://whatislyme.com/rest-in-peace/

They are geared more towards nonlyme people..i know that a lymie might not be able to sit and watch this and read everything, but I wanted to make them so that they could be played and loop at events on a background screen or whatever.

Lisa Hilton


Memorial  Video with Rock/Country Music



Memorial Video with No Music (Add your own playlist at events)



Memorial Video with Classical Music

Saturday, April 21, 2012

We lost more friends...

But God gained more angels...


Beverly Casey- Bev wasn't a Lymie but a good friend to many and a supporter of our cause. http://leflorecountyjournal.com/2012/03/18/beverly-casey-obituary/

Patrick Wylie Kelly April 2012

Andrea Raphael- Andrea’s Obituary


Mary Shea-  March 31, 2012