tag:blogger.com,1999:blog-8222948448760598103.post4860749212350382720..comments2023-11-05T01:50:53.778-08:00Comments on The Perfect Storm: The Reality of Lyme DiseaseBlog Administrationhttp://www.blogger.com/profile/13671091292515316492noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-8222948448760598103.post-55400676002196788652012-04-23T22:15:08.985-07:002012-04-23T22:15:08.985-07:00Hugs Kate..I pray your kids get real answers soon....Hugs Kate..I pray your kids get real answers soon...Its just not fair what is happening right now.Blog Administrationhttps://www.blogger.com/profile/13671091292515316492noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-46268845268262838052012-04-23T22:14:20.140-07:002012-04-23T22:14:20.140-07:00Hang in there Michelle, Im so sorry about your set...Hang in there Michelle, Im so sorry about your setback, but you will get there. BIg things seem to be happening, slowly but surely, so we gotta hold eachother up through this....We will make it <3 xoxo<br /><br />Thank you for reading my blog Michelle..I hope it helps you.Blog Administrationhttps://www.blogger.com/profile/13671091292515316492noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-53081040448677613942012-04-21T08:42:43.333-07:002012-04-21T08:42:43.333-07:00Just went back and read this in one of your commen...Just went back and read this in one of your comments.<br /><br />"We need help from people who have the strength. But I guess a sick person with a passion is stronger then a well person with not a care in the world." <br /><br />Powerful statement.Michelle Holdermanhttps://www.blogger.com/profile/15688490279422954556noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-57380640966160217522012-04-21T08:00:20.424-07:002012-04-21T08:00:20.424-07:00getting media attention is just a stepping stone t...getting media attention is just a stepping stone to opening this whole thing up... to getting money and minds concentrated on the issue and hopefully getting some results. I agree- my goal is a cure, I can live with remission and abx for myself, but I have 5 kids with Lyme and want them to have some sort of life. So for them I fight for a cure. Everyday I wake up swinging for them, I try to direct my anger in proactive ways that leads to awareness and in earning money to pay for all of this. So we make enough noise, and maybe more people will hear us, like the Whos in Whoville, it takes a lot of small efforts combined to get the attention of those who can truly make a difference. Coping with Lyme is not enough, not for my children at least.kate richardshttps://www.blogger.com/profile/05508713528532231146noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-795758740509739152012-04-21T07:48:06.931-07:002012-04-21T07:48:06.931-07:00Lisa, I couldn't agree more. You put words to ...Lisa, I couldn't agree more. You put words to my thoughts about all this too. I'm an optimist but I'm also a realist. I recently had a significant, unforeseen setback and have been feeling rather shell shocked by it. Feeling so bad physically yet struggling to keep motivated and putting one foot in front of the other. Doing all the right things and still yet....what you said. And so it is for many of us.<br /><br />I've been reading your blog for a little while now and just wanted to say thanks for being another voice of truth and compassion. Love and blessings to you.Michelle Holdermanhttps://www.blogger.com/profile/15688490279422954556noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-86339515932909502262012-04-20T12:59:50.989-07:002012-04-20T12:59:50.989-07:00Wow Pixie, seriously I got chills reading your res...Wow Pixie, seriously I got chills reading your response and then I started to cry. I can soo relate. I am sorry you are living through this. But yeah like you said, thank God for Facebook and online networking. It makes me wonder how many people don't even have that? <br /><br />And another thing that makes me sad is where are our families and friends? How can such a group of sick patients fight this massive wall we are up against. We need help from people who have the strength. But I guess a sick person with a passion is stronger then a well person with not a care in the world.Blog Administrationhttps://www.blogger.com/profile/13671091292515316492noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-86165388111075031382012-04-20T12:56:45.437-07:002012-04-20T12:56:45.437-07:00THank you Alyssa, and thank you for being truthful...THank you Alyssa, and thank you for being truthful about it. I see so many people not want to "admit" all this about Lyme. I think its part of the stages...denial. Not wanting to admit Lyme has affected you as much as it has. Thanks for readin my blog, hope today is a good day for you. <3Blog Administrationhttps://www.blogger.com/profile/13671091292515316492noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-72584979513590730512012-04-20T12:38:12.106-07:002012-04-20T12:38:12.106-07:00Your blog hit too close to home today, as I sit in...Your blog hit too close to home today, as I sit in my recliner trying to get up. Had an appointment this morning , takes me two hours to get ready for a half hr apt, and that's my day. Maybe on a good day, I can cook. Maybe not today, maybe not tomorrow either..as I sit in my recliner waiting to get better, I have great ideas, things I want to do, people I want to help. Maybe tomorrow I say. Maybe a week goes by, maybe a few hours.. I try to fight.. Accupuncture, antibiotics, supplements, rife chiropractic, support groups networking. Only to find myself back in the recliner.... Another day. Another pain, new symptom, new joint, another broken relationship, another failed attempt at a real life. Thank God for facebook.. But also the only facebook I can relate to is my Lyme friends. As I watch others who are not I'll live their life and travel, go to different destinations, it reminds me of my former life. My former life I traveled the world, worked full time, and took things like getting out of bed for granted. I travel for free , have alot to live for and can not get out of the recliner. There has got to be an answer...... If I can only find it, If I can get out of recliner..... Maybe tomorrow...lymepixiehttps://www.blogger.com/profile/16309346844716550257noreply@blogger.comtag:blogger.com,1999:blog-8222948448760598103.post-25471546467366427862012-04-20T12:07:49.012-07:002012-04-20T12:07:49.012-07:00This is an excellent post! I always say "comp...This is an excellent post! I always say "compared to others I am so good...so I won't complain". We need to make promises to ourselves, our children, and those who get sick in the future that we will continue to push for proper diagnoses, proper treatment and a CURE! Remission is not a cure...and neither is functioning only because you take your antibiotics everyday.Anonymousnoreply@blogger.com